Why Feeding Tube Awareness Week Feb 7 – 13 is important?!?

We have been a little quiet on this blog.  I promise it is for good reason.  After Super Mighty Max’s week in the hospital a few days later we moved.  Downsizing from a 4 bedroom home to a 2 bedroom apt has had its fair share of challenges, one mainly being space.  No more keeping said document or piece of clothing or special dish.  We have had to purge lots of significant things, thus why the blog posts have been irregular, we are sorting through.  I digress, but can’t let this week go by without acknowledging Feeding Tube Awareness Week! 

If if wasn’t for science and the intervention of a gastronomy tube (g-tube)/feeding tube Super Mighty Max wouldn’t have received the nutrients he needed to flourish and grow when he was considered failure to thrive.  Although we have made progress with taking a bottle then sippy cup to eating solid stage 2 food Super Mighty Max isn’t quite ready to give it up just yet.  He is still microaspirating which could lead to respiratory distress if prolonged.  So we stopped solids and cups until Super Mighty Max says he is ready.

We have learned how to feed him via g-tube/feeding tube while traveling by car, in restaurants, on quick shopping trips, and most importantly our love ones have mastered feeding him via g-tube.  When we first moved to Va that was one of the first things we showed my parents and sister how to master so Super Mighty Max ate when Brandon or myself weren’t around.  
Feeding tube awareness week is important because it is how many people receive their nutrition and are able to grow and develop.  Acknowledging that this week exists removes the atypical stigma associated with anything out of the norm.  Having a feeding tube may seem like a bear in the beginning, but in the end it’s what has kept Super Mighty Max and many others alive in order to thrive.

Super Mighty Blessed Podcast is coming and we are excited for you all to tune in.  

Stay Super, Make Mighty Moves, and Be Blessed! 


Posted on February 13, 2016, in Maxwell's Story. Bookmark the permalink. 1 Comment.

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